Individual Membership

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Creating a better world for people with genetic connective tissue disorders through

AWARENESS, SUPPORT & THE PROMOTION of RESEARCH

TOGETHER

The EDS & CTD Massachusetts and New England Support Group meets quarterly. And while we began as an in-person group meeting in the Greater Boston area, since the pandemic we have met over Zoom and hosted patients, families, friends and allies from all over the world. We carefully vet our prospective members in order to ensure a safe, supportive environment in our group both online and in person. If you are interested in joining as an individual who’d like the camaraderie, support, and education that our group provides, please fill in the form below. With your membership, you’ll also receive a biweekly email newsletter with updates on what’s going on in the group and happening in the Connective Tissue Disorder world. We share resources, stories, legislation, and initiatives so that we can all become our own best advocates.

Please know that we do not sell or share your personal information, and we do not share names of group members or any other information without our members’ permission. We do our utmost to provide a safe environment and to promote trust among members.

*Note: current members do not need to fill out this form. (If you’re already receiving update emails from us, there’s no need to fill out the form.)

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Thank you for your response. ✨

Name

Location: City & State (if in the US) or City & Country (if not in the US)

Phone

Are you a:

How long have you or your loved one been diagnosed?

Tell us a little bit about your CTD journey, and what you hope to gain from joining our group:

If you lead a CTD support group and would like to become an affiliate group, tell us about it!

Or join as: Researchers, Physicians, Healthcare Professionals

What people are saying

“Support groups provide a sense of community and belonging, and I found that this extends to caregivers such as myself. I have learned much about EDS and also about caregiving. All of us together make a great team.”

— C.C.

“Being a member of this group has helped me grow in so many ways. What I once thought of as an ending has opened into many new kinds of beginnings.”

— Kris J.

EDS and CTD New England/MA Support Group