EDS and CTD New England/MA Support Group

We Are Visible by Karina Sturm gives a voice to a neglected community: People living with invisible disabilities, specifically in the context of the rare condition Ehlers-Danlos Syndrome (EDS). It showcases the challenges this community faces due to misconceptions surrounding invisibly disabled people and conveys the strength and resilience with which this community fights to become seen. Our condition might be invisible, but we are not! Click here for more information, a list of awards, and other EDS-related films, podcasts, and videos by Karina.

Bend Not Break, an award-winning documentary based on the memoir of Mitch Martow. The story begins with a 14-year-old boy’s struggle with sudden chronic pains and takes us on a journey of multiple misdiagnoses to finally understand the actual disease (EDS – Ehlers Danlos Syndrome).