The latest research regarding Hypermobile Ehlers-Danlos Syndrome (hEDS), Hypermobility Spectrum Disorders, and the very exciting research results that have just begun to shine a light on one of the most difficult “rare” CTD diagnoses to obtain.
Listings include a link embedded in the name of the study, the year it was published, and a credit to the group member who shared it with us.
Listed from most recent (top of list) to older resources (bottom of list).
Variants in the Kallikrein Gene Family and Hypermobile Ehlers-Danlos Syndrome-PREPRINT, important discovery of a possible gene variant in the search for genes responsible for hEDS. The next step is a full peer review and then publication, check back for updates! June 2024
Looking back and beyond the 2017 diagnostic criteria for hypermobile Ehlers-Danlos syndrome: A retrospective cross-sectional study from an Italian reference center, “An incredible research study on one of the most important topics for all of us, getting properly diagnosed using accurate and all-encompassing information on the many comorbidities there are and showing the non-rarity of hypermobile EDS and much, much more.” –Jon R., American Journal of Medical Genetics, September 2023, via Donna S.
EDS and CTD New England/MA Support Group 
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