Category: legislation
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Proclamation for EDS Awareness Month in MA
May is EDS Awareness Month and there are indeed several ways to raise accurate and progressive awareness of EDS in all its types and how their “lovely” comorbidities are presented. Unfortunately, important information gets lost in the same old of stale messaging and misinformation that we have seen year after year. I am going to…
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February is Proclaimed Marfan Awareness Month in MA!
Thanks to the efforts of Jon Rodis, Debbie Mozes, and others who dedicated their time, Governor Healey has Proclaimed February 2024 as Marfan Syndrome Month. You can read more about this condition on the CTC Marfan Info Sheet, and be sure to share with your CTD friends! It could save someone’s life. Gratitude to all…
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Legislative News
A collection of news stories regarding State and Federal legislation in development, recently passed a single chamber, and signed into law that directly affect our lives with CTDs.
EDS and CTD New England/MA Support Group 