Category: research
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Research Roundup: Hypermobility and Hypermobile EDS
The latest research regarding Hypermobile Ehlers-Danlos Syndrome (hEDS), Hypermobility Spectrum Disorders, and the very exciting research results that have just begun to shine a light on one of the most difficult “rare” CTD diagnoses to obtain. Listings include a link embedded in the name of the study, the year it was published, and a credit…
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Research Roundup: Sleep & Sleep Disorders
The latest research regarding sleep health, sleep disorders, sleep apnea, insomnia, and other issues people with CTDs deal with in the dreaming part of their day. Listings include a link embedded in the name of the study, the year it was published, and a credit to the group member who shared it with us. Listed…
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Research Participation Opportunities
A bulletin board of current research projects looking for subjects or volunteers. Invisible Disability in the Workplace received December 2023 Contact Information: Michelle Perone, Ed.D(c), M.A., email:MPerone0648@csm.eduI am currently a doctoral student at College of Saint Mary in Omaha, NE in Educational Leadership with emphasis in training and development. For my dissertation, I am conducting research…
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Research Roundup: Skin, Muscle, Tissue, Healing
The latest research regarding skin and other body tissue and healing.
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Research Roundup: Vascular EDS, Marfan, and Loeys-Dietz
The latest research regarding issues specific to Vascular EDS, Marfan Syndrome and Loeys-Dietz.
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Research Roundup: Eyes/Vision
The latest research regarding optometry and ophthalmology in CTDs, from newest to oldest.
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Research Roundup: Genetics
The latest research in CTDs and Genetics, listed from most recent (top of list) to older resources (bottom of list).
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Research Roundup: Neurology
The latest research in CTDs and Neurology, listed from most recent (top of list) to older resources (bottom of list).
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Research Roundup: Musculoskeletal
The latest research in CTDs and Musculoskeletal Conditions, listed from most recent (top of list) to older resources (bottom of list).
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Research Roundup: Mast Cell Disorders
The latest research in CTDs and Mast Cell disorders, listed from most recent (top of list) to older resources (bottom of list).
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Research Roundup: Endocrinology
The latest research in CTDs and hormones, listed from most recent (top of list) to older resources (bottom of list).
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Research Roundup: Gynecology/Urogynecology
The latest research of CTDs and gynecology and urogynecology, listed from most recent (top of list) to older resources (bottom of list).
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Research Roundup: Cardiovascular
The latest research of cardiovascular issues in CTDs, listed from most recent (top of list) to older resources (bottom of list).
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Research Roundup: Dysautonomia
The latest research of Dysautonomia and CTDs, listed from most recent (top of list) to older resources (bottom of list).
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Research Roundup: Autoimmune Issues
The latest research concerning Autoimmune Connective Tissue Disorders such as RA, Lupus, Sjogrens, etc. and genetic CTDs.
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Research Roundup: Mental Health and CTDs
The latest research in CTDs, Mental Health and Wellness, Autism and other areas of Neurodivergence, listed from most recent (top of list) to older resources (bottom of list).
EDS and CTD New England/MA Support Group 