Tag: Initiatives

• February is Proclaimed Marfan Awareness Month in MA!

  

  Thanks to the efforts of Jon Rodis, Debbie Mozes, and others who dedicated their time, Governor Healey has Proclaimed February 2024 as Marfan Syndrome Month. You can read more about this condition on the CTC Marfan Info Sheet, and be sure to share with your CTD friends! It could save someone’s life. Gratitude to all…

  pilarkristine

  February 22, 2024

  Initiatives, legislation

  CTD, Initiatives, Marfan, news, Proclamation

• Initiatives: Creating an Ehlers-Danlos Awareness Month in Massachusetts

  

  For years, Diana Cleaveland has led the effort to have May proclaimed EDS Awareness Month in Massachusetts. Here’s what it was like and what you can do!

  pilarkristine

  January 26, 2023

  Initiatives

  CTD, EDS, Initiatives

• Professional Membership

  Why should a Doctor, Researcher, Healthcare Professional, Med Student, Hospital Program Administrator or Legislator join our Group? The answer is simple!

  pilarkristine

  January 26, 2023

  Membership

  advocacy, CTD, EDS, Initiatives, legislation, Loeys-Dietz, Marfan, news, resources, stories, support group, updates

• Individual Membership

  If you are interested in joining as an individual who’d like the camaraderie, support, and education that our group provides, please fill in this short form.

  pilarkristine

  January 26, 2023

  Membership

  advocacy, CTD, EDS, Initiatives, legislation, Loeys-Dietz, Marfan, news, resources, stories, support group, updates