Tag: CTD
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Research Roundup: Hypermobility and Hypermobile EDS
The latest research regarding Hypermobile Ehlers-Danlos Syndrome (hEDS), Hypermobility Spectrum Disorders, and the very exciting research results that have just begun to shine a light on one of the most difficult “rare” CTD diagnoses to obtain. Listings include a link embedded in the name of the study, the year it was published, and a credit…
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February is Proclaimed Marfan Awareness Month in MA!
Thanks to the efforts of Jon Rodis, Debbie Mozes, and others who dedicated their time, Governor Healey has Proclaimed February 2024 as Marfan Syndrome Month. You can read more about this condition on the CTC Marfan Info Sheet, and be sure to share with your CTD friends! It could save someone’s life. Gratitude to all…
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EDS/HSD: Applying for Social Security Disability
The edited version of a webinar John Rodis and Kathleen Kane did on April 28, 2021 for the Metro DC EDS and HSD Support Group.
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Research Roundup: Skin, Muscle, Tissue, Healing
The latest research regarding skin and other body tissue and healing.
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Research Roundup: Eyes/Vision
The latest research regarding optometry and ophthalmology in CTDs, from newest to oldest.
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Research Roundup: Genetics
The latest research in CTDs and Genetics, listed from most recent (top of list) to older resources (bottom of list).
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Research Roundup: Endocrinology
The latest research in CTDs and hormones, listed from most recent (top of list) to older resources (bottom of list).
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Research Roundup: Gynecology/Urogynecology
The latest research of CTDs and gynecology and urogynecology, listed from most recent (top of list) to older resources (bottom of list).
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Research Roundup: Autoimmune Issues
The latest research concerning Autoimmune Connective Tissue Disorders such as RA, Lupus, Sjogrens, etc. and genetic CTDs.
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Photo Contest: Our Diversity is our Strength
We are not just Zebras, are we? This contest will highlight our symbolic strengths, feelings, and skills by way of the animals we find in our lives that inspire us and keep us going.
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Initiatives: Creating an Ehlers-Danlos Awareness Month in Massachusetts
For years, Diana Cleaveland has led the effort to have May proclaimed EDS Awareness Month in Massachusetts. Here’s what it was like and what you can do!
EDS and CTD New England/MA Support Group 